The National Centre for Young People with Epilepsy (NCYPE) has produced a freely available diary for children who suffer from seizures, with front cover designed by Tracey Beaker illustrator, Nick Sharratt.
Children with epilepsy have a fantastic new seizure diary filled with fun activities. A parent who attended one of the NCYPE's Childhood Epilepsy Information Service Conferences in 2008 spotted a gap in the market and helped the NCYPE team create this diary especially for youngsters aged 5-10. This is believed to be the first one of its kind in the UK.
The diary has space for recording seizures in a fun way - a vital help to doctors in diagnosing and managing epilepsy. It is full of pictures and cartoons donated by over 50 famous children's illustrators including Lauren Child, Axel Scheffler and Aardman Animations.
Thanks to the support of sanofi aventis, it is available free of charge by calling 01342 832243 ext. 296 or by emailing info@ncype.org.uk
Anne Fine, whose sister is an Epilepsy Nurse Specialist, and who helped out in assembling the diary explained to ACHUKA:
So few children with epilepsy get access to the sort of people like my sister who are good at allaying their fears, answering questions, persuading them to take their medication and chart seizures, etc, in the way they need. A lot of the parents aren't really in a position to keep up on all this either. The diary is filled with information and encouragement in a very accessible and attractive format. It will take a huge amount of the pressure off parents to nag the children to keep safe, take meds, etc, and makes the children feel so much more mainstream.
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